Posted by: createtosave on: June 15, 2009
I am very sure nobody in the world would want to be struck with a rare disorder such as mine. It is certainly unfortunate, but I am still able to survive through daily medications and frequent blood transfusions. When my parents proposed to attempt vitro fertilization with new screening techniques to produce another baby – [...]
Posted by: createtosave on: June 14, 2009
Our son Charlie suffers from a rare disorder resulted from genetic mutation that prevents his body from producing red blood cells, causing him to rely on daily medications and frequent transfusions. And even though Charlie could live during such close medical care, he would not be able to lead a normal life like other children [...]